Patient Engagement Clearinghouse

Patient Engagement & Adherence Resources

FACE-TO-FACE

Mended Hearts’ Visits at the Hospital Bedside

Trained volunteers visit patients and their families before and/or after a heart procedure. Volunteer training materials also available; contact for more information.

Mended Hearts’ Monthly Support Groups

Located in 300+ communities nationally. These groups include expert guest speakers and trained moderators to offer support and encouragement.

WomenHeart Support Groups

More than 100 support groups, led by trained patient volunteers, meet monthly in places around the country. They offer women with heart disease critical peer-to-peer support, information and encouragement. Click here to find a group near you. 

SisterMatch

WomenHeart will connect women with heart disease who are seeking one-on-one support with a WomenHeart Champion volunteer who can provide needed support over the phone, in person, or via email at a time convenient for both parties. To learn more or request support, click here.

Materials

Mended Hearts’ Visiting Vignettes

Monthly newsletter, ongoing training for volunteers in encouraging patients to take an active role in their health care.

Mended Hearts’ HeartGuide

Includes encouragement and how-to tips to help patients adhere to prescribed therapies. Available online, hard copy, English and Spanish.

Mended Hearts’ Go-to Guides

Educational flipbooks offering signs, symptoms, treatment and prevention tips of heart disease. • Trifold informational brochure, for those newly diagnosed with heart disease letting them know there are many resources available to help and support them. Available in print and electronic versions.

Mended Hearts’ Chapter Newsletters

Newsletters feature Mended Hearts’ National Resource Center (NRC) provided articles (including patient adherence material) for 300 chapters to share with their local communities.

WomenHeart Educational Materials and Virtual Red Bag of Courage

These include education modules, videos, and fact sheets on the importance of participation in clinical trials, living with various conditions like heart valve disease or heart failure, and other  information to help patients not only adhere to treatment but to thrive. To access the materials, click here.

Online Support

Mended Hearts’ Online Moderated Discussion Groups

Topics include: valve disease, heart failure, atrial fibrillation, LVAD, others, where trained volunteers engage in online dialogue to support those on their heart journeys.

Mended Hearts’ Webinars

Interactive sessions on specific topics (e.g., cardiovascular disease risk reduction, valve disease etc.) to engage patients and caregivers and inform them about what they can do.

HeartSisters Online

WomenHeart offers online live, virtual, peer-to-peer support groups for women with heart disease and their loved ones. Learn more here.

WomenHeart’s Online Support Community

This online community, hosted by Inspire, provides a vibrant forum for emotional support and information sharing among women with heart disease and their family members and their friends. Learn more here.

Telephonic Support

Mended Hearts’ Telephone Support

Features trained volunteers who offer support and encouragement outside of the hospital environment.

SisterMatch

WomenHeart will connect women with heart disease who are seeking one-on-one support with a WomenHeart Champion volunteer who can provide needed support over the phone, in person, or via email at a time convenient for both parites. To learn more or request support, click here.

Research

Improving Medication Adherence in Cardiometabolic Disease Practical and Regulatory Implications

  • Article published in the Journal of American College of Cardiology, this paper summarizes the scope of CVD nonadherence, describes key U.S. Food and Drug Administration initiatives, and identifies potential targets for improvement.

Disparities in hypertension and cardiovascular disease in blacks: The critical role of medication adherence

  • Article published in the Journal of Clinical Hypertension, this paper identifies 8 practical approaches to addressing medication adherence with the potential to attenuate disparities. Keith C. Ferdinand, Kapil Yadav, Samar A. Nasser, Helene D. Clayton-Jeter, John Lewin, Dennis Cryer, Fortunato Fred Senatore
Tools & Resources

Disparities in hypertension and cardiovascular disease in blacks: The critical role of medication adherence

Article published in the Journal of Clinical Hypertension, this paper identifies 8 practical approaches to addressing medication adherence with the potential to attenuate disparities. Keith C. Ferdinand, Kapil Yadav, Samar A. Nasser, Helene D. Clayton-Jeter, John Lewin, Dennis Cryer, Fortunato Fred Senatore

Policies To Optimize Patient Access to Evidence-Based Therapies ​

WomenHeart’s Access NOW! Education & Advocacy Campaign

Campaign to improve access, with a Know Your Rights guide to challenging denials.

WomenHeart’s Principles of Health Care Reform (WomenHeart)

To protect and preserve access to health care for women living with heart disease

PCSK9i Patient Access Prior Authorization Out-of-Of Pocket Cost

Article published in JAMA Cardiology evaluating patient access to PCSK9i among those prescribed therapy using pharmacy transaction data.

Shared Decision Making Tools

What is FH?…And What Do I Do About It?” (legal size)

A Shared Decision Making tool designed for patients and providers to use in role modeling conversation on discussing FH and treatment options, created in collaboration with the FH Foundation and American Pharmacists Association Foundation (legal size document)

What is FH?…And What Do I Do About It?” (letter size)

 

What is Statin Intolerance?…And What Do I Do About It?” (legal size)

A Shared Decision Making tool designed for patients and providers to use in role modeling conversation on discussing statin intolerance and treatment options, created in collaboration with the National Lipid Association and American Pharmacists Association Foundation (legal size document)

What is Statin Intolerance?…And What Do I Do About It?” (letter size)

 

Survey

ABC and ACC  Survey Data: Eliminating Access Disparities

ABC and ACC collaborated on a two-phase initiative focused on disparities in access to treatment among minorities and underserved populations. The first phase of this initiative was a survey among ABC and ACC members which addressed current issues of access to cardiovascular therapies and perspectives of disparities that exist in patient care. The second phase was a Forum conducted at ACC.18 that brought together a diverse group of stakeholders to provide further insight and clarity around the issues of access, with a focus on the challenges faced by minority and underserved patients with varying levels of insurance.

Value & Access Clearinghouse

Stakeholder Resources